As a family, we were impressed with the care Pat — my young husband who was also a loving son, a new father and a tremendous friend — received from nurses in Texas and Seattle. But after eight weeks of hope, we lost him.
Patrick Barnes died in 1999 at the age of 33 from the autoimmune disease idiopathic thrombocytopenic purpura. In the midst of our grief, we felt a strong need to say thank you to his nurses. Our one thank you has grown into more than 1 million more for nurses around the globe.
Patrick’s death left a gaping hole in our hearts and lives. We knew early on that we wanted to do something in his memory — something that would keep his very special, kind, funny, giving spirit alive.
We decided to form a nonprofit foundation, naming it DAISY, an acronym for Diseases Attacking the Immune System, tying back to the condition that took Pat from us. What would the DAISY Foundation do? How would we turn our grief into something positive?
Days after his death, our family met for dinner to regroup. The conversation kept coming back to his nurses. They were kind, thoughtful, patient and tender. They were also our advocates, interpreters, educators, our lifelines, our friends and, ultimately, felt like part of our family.
We expected the excellent clinical skills they provided. What we didn’t expect was the level of compassion they brought to Pat and to us, even when he was completely sedated. Their care gave us our “aha moment” for DAISY’s mission. DAISY would recognize nurses in a very public way for their compassionate delivery of skillful care. DAISY would give other patients and families a way to share their stories and celebrate their nurses.
We realized that nurses don’t recognize the tremendous impact they make every day. We would change that!
DAISY Award is more than just a recognition program
Our labor of love was put into action in the form of The DAISY Award for Extraordinary Nurses. The DAISY Award is based on recognition by patients, families and staff on an ongoing basis, not just annually. Throughout the year, an internal committee at each facility selects an honoree, based on nominations received and presents the award, with peers, leadership and often the patient and family who nominated in attendance.
The first DAISY Awards for Extraordinary Nurses were presented at the two hospitals that cared for Pat. Initially ours was a grassroots effort, with us envisioning 10, maybe 50 hospitals implementing our program for their nurses.
Today there are more than 3,200 healthcare facilities and schools of nursing across the U.S. and in 17 other countries committed to honoring their nurses with The DAISY Award.
More than 100,000 nurses have received the award and more than 1 million nominations have been written, expressing gratitude to a nurse. That number truly astounds us — more than 1 million times a patient, family member or colleague took their time to describe the very extraordinary, unexpected difference a nurse has made in their lives.
We attribute the opportunity for more than 1 million people to thank their nurses to our tremendous community of DAISY nurses and leaders who share their experiences with each other. This viral, organic growth was unexpected. But it affirms the need to say thank you and the power of meaningful recognition of extraordinary compassionate care.
In 2009 we had a little more than 400 hospital partners. Each year since, we have welcomed an average of 275 new hospitals into the family. Our biggest increase yet was in 2017, with the addition of 422 new DAISY programs. We are on track for the same amazing growth in 2018!
DAISY Award spreads across the country and globe
DAISY has representation across all 50 states with some states such as North Carolina having nearly all of their hospitals adopting the award program. There is still growth potential, especially in long-term care, ambulatory facilities and surgery centers. Moreover, the opportunities for expansion internationally are unlimited. Our desire is to make DAISY recognition available to all nurses, no matter where they practice or what their practice setting may be.
As the foundation has grown, so has our gratitude to nurses. In addition to The DAISY Award, we have award programs for nursing faculty, nursing students, nurse led team and nurse leaders. The DAISY Foundation also funds research and EBP projects via the J. Patrick Barnes Grant for Nursing Research and Evidence-Based Practice Projects.
Hospital administrators often tell us that the DAISY Award is “inspirational,” “a great morale booster,” an “excellent tool for nurse retention” and “a way to develop role models.” We never imagined the strategic impact of the DAISY Award or the growing evidence of what DAISY, as a program of meaningful recognition, can do to improve healthcare work environments.
We were a grieving family trying to move through unbearable loss. In doing so we created a positive legacy of remembrance for Pat. The path we embarked on has been cathartic and inspiring for us, and we are realizing, for a million others as well. Through the work of DAISY, nurses still touch our lives every day.