President Obama’s Precision Medicine Initiative, launched in late January, has formed a team of experts who will seek public input from stakeholders and articulate the plan for building a national participant group, according to a news release.
The Working Group of the Advisory Committee to the NIH Director will look at what issues need to be addressed and what success will look like five and 10 years out, delivering a report in September.
Of the initial funding of $215 million for the initiative’s 2016 budget, $130 million would be dedicated to building a group of 1 million or more research participants who will volunteer to share their biological, environmental, lifestyle and behavioral information and tissue samples with researchers, the press release states. Participant will provide input that will be central to the design and implementation of the study.
“Establishing a 1 million-person cohort is an audacious endeavor,” NIH director Francis S. Collins, MD, PhD, said in the press release. “But the results from studying such a large group of Americans will build the scientific evidence necessary for moving precision medicine from concept to reality. I’m confident that we’ve pulled together the best of the best in this working group to put us on the right path forward. And we look forward to broad input from a wide cross-section of stakeholders as this process moves forward.”
A two-day workshop was held in February which shaped objectives for the ACD. The initiative’s immediate goals will be to expand efforts in cancer genomics to create prevention and treatment programs, according to the NIH website. It will support clinical trials, partner with pharmaceutical companies, develop solutions to drug resistance and develop new tumor cell models to predict response to drug combinations and to define mechanisms of resistance.
Long-term goals are to build a comprehensive scientific knowledge base to put precision medicine into practice on a much larger scale. The initiative will support a national network of scientists and launch the national cohort study to propel an understanding of health and disease. Each volunteer participant will share their genomic information and biological specimens to help researchers understand how genomic variations and other health factors affect the development of disease.
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