You are here:--A hard lesson learned

A hard lesson learned

Sophie Flatz Murray, RN

More than 63 years later, a young mother’s sorrowful appeal still haunts me. I was a second-year nursing student assigned to a toddler unit at the Babies Hospital at Columbia-Presbyterian Medical Center (now Morgan Stanley Children’s Hospital) in New York City.

The instructors would encourage us to interact with our young patients after we completed our patient care assignments. We happily engaged them in activities such as storytelling, singing and reading, and, if permitted, brought them to the spacious playroom for other activities. This was a fun experience for the student nurses and our small charges, a time when we were free from the stress of administering blood tests and treatments.

Back in the 1950s, hospitalization lasted weeks before discharge and, sadly, some children remained hospitalized indefinitely. We cared for patients with cystic fibrosis, TB, meningitis, nephrosis, leukemia, Tay-Sachs disease, juvenile diabetes, sickle-cell anemia and other, then-incurable disorders. Many children died, sometimes in the caring arms of the nurses on duty.

On visiting days — which were limited to twice a week, a nonsensical rule of the time — we students would mingle with parents and be prepared to console our small charges after they left. This was an era long before all-day visiting on pediatric units. Rooming-in still was light years away.

A day I shall never forget occurred when the mother of a child born with familial dysautonomia asked a group of us to step into her 18-month-old son’s cubicle. Children with this genetic condition suffer from dysfunctions of the autonomic and sensory nervous systems because of the incomplete development and loss of certain nerve cells, resulting in an incomplete development of nerve fibers. Typically they have poor muscle tone, blotchy skin, difficulty in maintaining body temperature and the absence of tears when crying. At that time, most children with the condition would not reach their fifth birthday.

With tears rolling down her cheeks, the mother pleaded, “I know that Jason is not as cute and appealing as some of the other children on the ward, but he is my beautiful baby boy and he needs the same love and affection as do the others. When I’m not here with him, I ask if you students would pick him up and play with him, too.” She said she was aware of his long-term prognosis, which was grim.

We stood somber and silent for long moments as we surrounded Jason’s crib. No one spoke, for her words had left us feeling shameful and sad. What was lacking in our youthful compassion? We filed into the hallway, each resolved to examine our behavior and increase our sensitivity to patient needs. I vowed to remember this mother and the hard lesson she taught us all. It was a lesson more profound than anything we might have read in our textbooks or heard in lecture halls.

Years later, I continued practicing pediatric nursing in a much smaller community hospital. My role as clinical coordinator often involved orienting new staff and affiliating students. Without fail, I included a teaching moment from my own student experience and repeated those heartbreaking words spoken by that anguished mother back in 1950. Judging from the students’ expressions, the story still packed a wallop and even brought tears.

Then and now, the neediest child on the pediatric unit need not be the least physically attractive or even the sickest. He or she may be the loneliest or the most worried and troubled. Our role as pediatric nurses remains to identify and respond with love and compassion to the “least of our brethren.”

To Jason’s mother: Today I am 82, and I will never forget the lesson you taught us.


CE Subscriptions Built for Your Convenience!

750+ ANCC-accredited courses. 2 subscription options. CE that
meets your needs.

By | 2021-05-07T16:26:05-04:00 March 24th, 2014|Categories: Nurses Stories|1 Comment

About the Author:


One Comment

  1. Avatar
    Shauna Lazarus November 8, 2015 at 4:00 pm - Reply

    What haunts me more than the “lesson learned” here in this nurse’s story is the very notion or fact if you will, that nurses, any nurse, would have to be taught compassion on the job. In other words, what are you doing as nursing students (especially back then!) in the first place if the genetic propensity for compassion wasn’t already there? Were you all just in it to meet an MD husband and earn a paycheck in the meantime?
    Yes, it is heartbreaking that a mother has to tell a bunch of clueless nurses to hold and coddle her “less attractive” infant. It is absolutely pathetic that a mother sensed her very ill baby was being ignored because he was too sick to look like a cherub angel with big beautiful round cheeks and a plump cuddly body. But this was a hospital not a beauty contest and the ignorance of nurses in the 1950’s and up in this nurse’s career path is the most disturbing to me of all. Yes – I feel sorry for that mother and all mothers of sick and terminally I’ll children – that is devastating enough but to have to relay such a narrative in order to shame and guilt pediatric nursing students into digging up their compassionate genes is what is the saddest and most troubling component of all here. If compassion doesn’t come naturally then get out of nursing; at the very least, stay away from children and pediatric nursing! This story is a shameful reflection on how poorly children and parents of the terminally I’ll have been treated over the years by people who were supposed to be the entrusted caregivers of the most vulnerable. SHAME on all of you is right!!! I hope you carry this to your grave. A public confessional does not absolve you of your guilt and culpability here.

Leave A Comment